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Published 08:42 2 Apr 2019 BST
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And so, in order to get treatment for his rare tumour and to fight the cancer which has now spread to his lungs, Lee's mother, Dawn, has set up a GoFundMe page in order to help raise vital funds.
"Having done a lot of research we are aware of treatment options in other countries, but unfortunately these treatments carry a large price tag. Your financial support will give Lee the best chance of finding a cure and a chance to live," the post reads.The family have already raised €106,676 from over 2,488 people with their goal being €250,000. You can donate here.